Skip to main content

Um... What am I supposed to do with this mess?

I have been given so many labels I can open a department store. Yet none of the diagnosis have been properly treated. I have been accused of faking being ill,it being all in my head,and my all time favorite,very complicated.
Well my complicated behind has something grandma washin powders cant seem to get rid of! And the nerve that they didn't have the decency to tell me what I had! I'm round here hurting and they got me ready to pull every strand of hair out of my head! I went to the neurologist cause my doctor said there was nothing she could do at this point. Well I went in there and told him the right side of face felt like Novocaine wearing off! He was a little nonchalant. I was admitted into the hospital for testing. It was supposed to be overnight, I went in on Thursday and got out Monday. When I got home I was unable to do anything for myself and I was too embarrassed to ask.I would muster up enough strength to get my baby off to school and home from from school. I started falling and just didn't want to get outta bed.

In my mind all I kept thinking was here we go again. The tremors, the falling, the headaches, just the worst. This past Monday I went to the Neurosurgeon.Yeah the Neurologist told me i didn't need to come back to him. I am a pass around patient! No one wants to deal with the issue at hand (my health) so I get passed around from one doctor to the next. I was told I didn't need surgery but my neurologist could have just treated me. Well when I got my medical records and patient summary, I found out what I had.

I am the owner of Demyelinating disease of central nervous system. On top of that I have Transverse Myalitis and firbromyalgae. Both of these will eventually turn into MS. This is like you got enough money to buy gas or food but not both! 
How am I suppose to deal with this mess?
What am I suppose to do with this mess?
I need answers!!!

Comments

Popular posts from this blog

Pieces of Me

Once of my favorite songs is Ledisi's "Pieces of Me". That song describes me to the T! It says so much about how I feel on a daily basis. I have learned how to cover my true feelings for the sake of others, and  I am a master at laughing to keep from crying.  I have a bad habit of compromising my own happiness for the sake of others. It's funny how I can be strong for everyone else but me. I'm too busy worried about hurting someone's feelings. I realize now I can't really help that because these things were instilled in me at a very young age. When someone said "aww she's so pretty", my aunt would say "no she aint"! Although I love her to the depths of my soul, she was mean as hell to me growing up. I will share that another day. Today I'm just preparing you for what's to come. My life was like the Color Purple, "You bet not tell nobody but God". To endure all the things that were inflicted upon me was like

Farewell and Hello..........

                                      I just looked at the date and realized I should have launched this blog yesterday. November 19 has held some memorable events for me. At age 9 I was baptized, age 13 I got saved, age 19 I tried again. Although those are all very memorable moments, the biggest was at 12 when I "official" became a woman. Who knew that "special" friend would change the way you looked and felt at least 5 days out of the month! Today as I type my first page I am adding two new memories to my life. The first is being able to break the chains that have consumed me over the years. I have sat back in silence struggling with pain,disappointment and agony. I've been asked over and over again, when are you going to write that book. Well here is the prequel to what's to come. I hope that my pain can heal and strengthen someone who needs it. This is my truth,my journey,my struggle. I just want a release...... I found strength and courage to

Love You

In order to appreciate real love, you must first know what love is. Self love is your first introduction. Many of us were not blessed to have loving parents so we have to love ourselves the way we want others to love us............ ~Camela Joyce