I'm Juzz Sayin

In 2009 I was told I would die before they figured out what was wrong with me. 2018 they told me Im lucky to still be here cause this disease should have been taken me out. I realized something over the weekend.I may not have the quality of life I'm accustomed to. But I'm still here. I cried because I wasted time I will never get back. I cried because I have to face reality that I may not be the last one on earth to turn the lights off... Then I had a epiphany. If you know the storm is coming, you prepare, Do what you can while you can. Yesterday I also realized this, I'm not going to fight for you. I gotta fight to live for myself. And when when this cross gets unbearable and I can't carry it anymore,I need people in my life to be at peace and let me go. Nothing is more exhausting on a person who has an incurable disease than to fight for themselves and the people they love. Friday afternoon I had a visit with pain management.During this visit