Skip to main content

Um... What am I supposed to do with this mess?

I have been given so many labels I can open a department store. Yet none of the diagnosis have been properly treated. I have been accused of faking being ill,it being all in my head,and my all time favorite,very complicated.
Well my complicated behind has something grandma washin powders cant seem to get rid of! And the nerve that they didn't have the decency to tell me what I had! I'm round here hurting and they got me ready to pull every strand of hair out of my head! I went to the neurologist cause my doctor said there was nothing she could do at this point. Well I went in there and told him the right side of face felt like Novocaine wearing off! He was a little nonchalant. I was admitted into the hospital for testing. It was supposed to be overnight, I went in on Thursday and got out Monday. When I got home I was unable to do anything for myself and I was too embarrassed to ask.I would muster up enough strength to get my baby off to school and home from from school. I started falling and just didn't want to get outta bed.

In my mind all I kept thinking was here we go again. The tremors, the falling, the headaches, just the worst. This past Monday I went to the Neurosurgeon.Yeah the Neurologist told me i didn't need to come back to him. I am a pass around patient! No one wants to deal with the issue at hand (my health) so I get passed around from one doctor to the next. I was told I didn't need surgery but my neurologist could have just treated me. Well when I got my medical records and patient summary, I found out what I had.

I am the owner of Demyelinating disease of central nervous system. On top of that I have Transverse Myalitis and firbromyalgae. Both of these will eventually turn into MS. This is like you got enough money to buy gas or food but not both! 
How am I suppose to deal with this mess?
What am I suppose to do with this mess?
I need answers!!!

Comments

Popular posts from this blog

Allow me to reintroduce myself...

Well this blog is called the Lyfe and Tymes of Camela Joyce, and I have been MIA for a spell! Let me tell you I have so much to share you may get three post a day until I get it all out,lol. While I was away I became single, a grandmother,confused by religion,got people mad at me cause I don't wanna go to Wakanda!! Needless to say I have a lot to talk about and there is no time like the present!

Validation

Unless your in a parking garage, stop looking for validation. Did you not realize this morning when air filled your lungs,you were validated? Everyday that you rise and your still on this side, God has validated you! ~Camela Joyce

Happy New Year!!

I am truly amazed at how fast 2015 eased on out of here! It seems like six months ago we were saying, New Year, New Me. I'm just amazed at how I survived 2015! With the normal aches and pains I was doing pretty good, Then in April I had a "Man down " situation! I remember Staying up on a Wednesday night til 4a.m. I was cleaning, going through sweats and chills. Something kept saying don't stop moving. Later that day I went to a funeral with a friend and I kept it moving. By Saturday I was hurting like a son of a gun! Went to hospital got a test done and went home. The next day went back to the doctor and had emergency surgery that night! Doctor came in to tell me I was lucky to be alive. My appendix had exploded. He told me it had to be at least a week because of how they had to fish it out. Im amazed at how all my doctors tell me they have never seen a case like mine. Two days later I was undergoing another surgery. This one was to remove my spinal shunt. Seems l...